Tonight Oog had a bit of a tantrum after I asked him to say "Pig-let" instead of "Peh". He frowned at me, slumped over and said no (ok, he screamed it at me). I feel bad because without telling him how to say something, he won't get it, but on the other side, he's obviously aware that he speaks differently.
I feel terrible that I have to say things like "I'm sorry, I don't understand what you are saying" a hundred times a day.He gets frustrated that I don't understand (and I'm the one person that usually understands him), I get frustrated that I don't understand...it's hard.
On the bright side, he is attempting more and more speech. He is trying to string words together in sentences and even tell stories about what he did today. Obviously the language capability is there- which is huge. But, it is also just as obvious that he is struggling to find the right word, struggling to form the word, and struggling to string the words together.
We are working on expanding his ASL vocabulary. He attempts to say words that are hard, like friend ("huh") but he uses the sign with it so we know what he means (thank goodness). Unfortunately, as we attempt more complicated signs, I'm seeing that the apraxia may affect more than just his speech. It stands to reason that things like this are going to crop up since apraxia is a neurological disorder, as is sensory processing disorder (and then you got the hypotonia messing with his muscle tone). And since we don't know what in his brain is causing these things, it's hard to say what is going to be affected. Clearly his speech is, and apparently the little guy is going to have to work extra hard at certain other things - like holding a pencil and signing (and learning to use the big boy potty!).